This is a marathon not a sprint!

As I sit in PICU and reflect on the stress, tears and crazy organization mode I’ve been through in the last two weeks I realize that was my way of dealing with the unknown and lack of control. The scariest moment as a parent, is when you hand your daughter over to the medical team, while completely competent, they’ll never be you. That happened around 12:15 today, around 12:45 we talked with Dr. Brown and as suspected her airway was severely restricted, she was stable and he was ready to do the laryngotracheal reconstruction surgery or LTR. At 3 pm we met with him post surgery, everything looked good she would have drainage tubes at the site as well as being heavily sedated to keep her from moving and allow her to heal. For those of you that like the medical part, they used a 3mm tube at the beginning (same size that was used at birth) and a 4.5mm tube currently.

Just before dinner she woke up slightly, long enough for me to sing to her, caress her head and wear my momma’s here hat. The plan is to recheck her on Friday and potentially remove the intubation tube. So we wait.

 

 

6 Comments

  1. Sending prayers and support and more prayers!

    Reply
  2. Baby Sutton is a very brave and strong little girl. She made it through all the difficulties with her premature birth and she will again with this too. Hang in there Whitney & Chuck sooo hard to watch your little one go through more…but she will get better and stronger every day.

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  3. Still praying!!!!

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  4. I know that feeling. When Jessica was four she had to have surgery which had to be stopped and then a few months later it was performed at children’s hospital. I am praying for for you and Sutton. Remember God loves Sutton more than we could ever know. Love you guys

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  5. Keeping you in thoughts and prayers. It’s the scariest stuff that you’re going through right now. Hope that the next few days are filled with tons of healing. Thinking of all of you!

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