As I sit in PICU and reflect on the stress, tears and crazy organization mode I’ve been through in the last two weeks I realize that was my way of dealing with the unknown and lack of control. The scariest moment as a parent, is when you hand your daughter over to the medical team, while completely competent, they’ll never be you. That happened around 12:15 today, around 12:45 we talked with Dr. Brown and as suspected her airway was severely restricted, she was stable and he was ready to do the laryngotracheal reconstruction surgery or LTR. At 3 pm we met with him post surgery, everything looked good she would have drainage tubes at the site as well as being heavily sedated to keep her from moving and allow her to heal. For those of you that like the medical part, they used a 3mm tube at the beginning (same size that was used at birth) and a 4.5mm tube currently.
Just before dinner she woke up slightly, long enough for me to sing to her, caress her head and wear my momma’s here hat. The plan is to recheck her on Friday and potentially remove the intubation tube. So we wait.