Riding a real life millennium force

Last night was uneventful, which considering nights are usually worse was a good thing.

Around 5 is when things changed a bit. Her blood pressure (BP) was starting to come in below normal and she had a slight fever (slight for our pediatrician but later we learned high for the PICU). There was also some cloudiness on her chest X-ray. All of this might mean an infection, like pneumonia or it might just be a result of the surgery but it definitely means having her intubation tube taken out on Friday isn’t likely.  When I first spoke to the ENT he was saying next Wed, to allow the antibiotics  7 days to work. From our perspective this is concerning because she will have to continue to be intubated and sedated during that time.  The intubation can cause further infection and when you stop sedation you have withdrawals and the longer you’re on it the more you have. Also they are having to change up the sedation meds regularly because she is still waking up occasionally, in fact she tried to sit up while we were at dinner (why I have a hard time leaving the room). I spoke to him again this afternoon and he said that we will take it one day at a time. They’ve taken some labs to run cultures but those take 24 hours, anesthesia will have a concern with her temperature and her BP if it is still low.

So we ride and watch the monitors.

Thank you for the continued prayers and support.



  1. Thinking about you, Whitney and Sutton. Praying for the best possible outcome.

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